Hayden finished kindergarten on June 2. On her last day, she said she felt like it went by so fast, and she expected her school year to last longer! She has a full summer planned, bopping between day camp, gymnastics, theater, and probably lots of time at the pool.
Numbers are in from our first ever Hope for Hayden Fundraiser, and with the help of our community, more than $36,000 was raised for the Cystinosis Research Foundation! We are absolutely blown away.
The CRF will be funding new grants this September and your contributions will make an immediate impact.
We are fortunate to have so many people willing to step up when we need it most.
From the bottom of our hearts, thank you for your love and support.
This approval from the FDA brings us closer than ever to what we believe will be a cure for cystinosis.